A Few Good Memes

The opposum laid there, struggling to move, limbs akimbo, unobeying.

Thursday evening I went out for some last minute groceries, getting ready for the long road trip Saturday morning. It wasn’t going to be an easy trip. Alyssa was 8, Ian just 3. Emma’s age still measured in months. Anna and the kids had been in Charleston for the whole month of July, enjoying family, beach trips, ferries, turtle rescues, crabbing, surfing, movies, aquarium trips, and more. I had driven everyone out at the beginning of the month, stayed a week, and then had flown back to Indiana to work for a week and a half. When we arrived, Anna was feeling pretty good. Perhaps the best she had felt in the 16 months since her cancer diagnosis. It had stopped progressing for several months and her energy level and mood were way up. Despite the anvil still hovering inches above her head and the heads of all of us, there was a certain live-in-the-moment, cancer-be-damned ease about it all. A month at the beach was exactly what everyone needed.

While I was home mid-month, the call came in that Anna was experiencing some new abdominal pain. A trip to the ER brought the anvil down hard. Her cancer had spread all through her abdomen. It had finally outwitted the $3000/month molecular chemotherapy wonderdrug. There was still one bullet left in the gun, one more drug she could try once we got her home. We had to get packed and get home quickly.

On the trip home from the grocery store, I saw the oppossum. It had been hit. Its eyes were full of fear. I passed it and pulled over. Unsure what to do (could it be rescued?), I called my sister-in-law that we had been staying with, a naturalist. Her advice was to do the humane thing and put it out of its misery. There would be no way to save it or to rescue it. I steeled my will and went back. I drove slowly, feeling the crunch of its skull under my wheel. It was the right thing to do and the only thing to do.

Friday was spent packing. Feed and entertain kids. Anna’s pain was becoming quite severe. Despite a dramatic increase in her pain meds - morphine - she was really struggling. She spent the whole day in bed. Didn’t eat anything. Drank a bit of Boost was all. I sent the kids to the pool with my sister-in-law so I could just focus on packing up a month’s worth of living and get us home. Just had to get us home. Just had to get to her rockstar oncologist. Buy a little more time. A thimbleful more hope.

By 3pm I knew something had gone very wrong. Anna’s extremeties had started turning a greenish-yellow. Anna’s brother, R, had come over and we decided we needed to take her to the ER. Somehow, someway get some help so we could get her home. I helped her out of bed and down the steps to the van. That short journey was a huge struggle for her. Her last steps. Her pain was intense and overwhelming. We drove quickly and in silence to the hospital. Anna just trying to rest and manage her pain. I tried not to make a sound as the tears just ran and ran and ran down my face. My normally inexhaustible supply of hope was running dry quickly. At the ER, we got her in a wheelchair and into triage. Her condition was obviously so desperate that they wheeled her right to a room. The nurse there quickly sprang into action, moving rapidly and efficiently. Summoning help from others on the floor with urgency. She tried and tried, but couldn’t get an IV started. I just wanted them to get some pain meds into Anna so she wasn’t suffering so badly. I held her hand or stroked her shoulder or rubbed her forehead as much as possible, trying not to interfere with the nurse’s important business. Anna’s blood pressure was dangerously low - like 60/40. Her pulse was stratospheric - like 170 bpm. They couldn’t give her pain meds until they got her blood pressure up and her heart rate down. She was fighting for life. She couldn’t get any air. They got her stabilized, but it took a while and it was tenuous. We were told she was being moved to the ICU, so we headed up to the waiting room, awaiting further news and consultation.

I think it was maybe 9pm or so at that point. We realized we’d gotten hungry and probably had a long night ahead of us, so Anna’s brother went out to pick us up some dinner. Just as he was returning, we found out they hadn’t moved her to the ICU, but that she had taken a turn for the worse in the ER after we left. They had been looking for us. We rushed back down and the room was packed with doctors and nurses. It wasn’t looking very promising at all. Despite Anna having a Do Not Resuscitate order, she was conscious and had agreed to be intubated when the doctor offered. In other words, she was put on a ventilator since she wasn’t able to breathe. Of course she would have agreed. No one would elect to suffocate. They anesthetized her so she could be intubated. I stood outside the room and was sobbing uncontrollably. Anna’s brother beside me, standing by steadfastly. The young guy in the next room came over and told me I had to stop crying and be strong. I didn’t know whether to agree with him, tell him to shut the fuck up, hug him, or just ignore him. He had no idea just how strong I was and how strong I had been for 17 months. I just mumbled something and hoped he went away.

They finally did move Anna to the ICU and the doctor came and consulted with us. She was kind and competent and didn’t give us false hope, but outlined possible scenarios for success. Her best guess was sepsis and they were going to try and get her stabilized and back to some reasonable shape based on that theory. We sat in the room, me throwing kleenex into a mound on the floor, unable to find or care about a trash can. At this point, it was maybe 1am and we decided it was going to be a long day Saturday making lots of decisions, so we should try and get some rest. Anna was unconscious, stable, and as good as she was going to get for the time being. I went in and said goodnight. She was heavily sedated, but not completely out. She had the breathing tube in and was struggling at some low low level to get it out by tossing her head back and forth. I couldn’t bear to see her like that. I squeezed her hand and told her I loved her and rubbed her head and had to go. We headed back in silence and laid down to rest.

The call came in at 3am, July 29, 2006. One year ago today. Bad news and we had to get in right away. They wouldn’t tell us on the phone what had happened. We got back in the van and headed back in silence to the hospital. Whatever it was, it was obvious that hope had run out for us. The drive took moments and hours at the same time. The city was quiet, peaceful.

When we arrived, the doctor sat us back down in the room with the red couches and the no garbage can and informed us that Anna’s heart had stopped. They were able to revive her, but it was likely that she suffered brain damage. There was no longer any hope at all. We had to make the call about whether to keep her on life support. I already knew that Anna did not want her life artificially prolonged. I told the doctor it was time to say goodbye. It was the right thing to do and the only thing to do.

We waited a few minutes while they removed the ventilator tube and took off the various wires and tubes. We were ushered in. She was still breathing, albeit laboriously. She wasn’t conscious, but her eyes were open. The nurse put one final injection into her IV. I sat by her bedside, just stroking her gorgeous red hair over and over and telling her how much I loved her and how much our kids loved her and how much I appreciated her and how great of a mom she had been. How I was grateful for our lives together. How I would take good good care of our babies. How very very much I’d miss her. I just did that over and over again until she took her last breath. I watched her take her very last breath. She finally stopped struggling. Her pupils dilated until her eyes were almost completely black. I told her it was okay and she could rest. No more pain and no more struggle. I sat there doing that for a long time after she stopped breathing. Kissing her forehead and rubbing her hand. Rubbing her cheek. I saw no machines, I heard no sound. I just felt the deep, deep connection and love we had and that I knew we’d always have.

I was able to find some time that last Friday to talk to Anna. To reminisce a bit, to talk about what was to come. Despite not wanting to admit it at the time, we both knew it was the end. She told me I was a good father. She was grateful for the love we shared. Anna never swore. She looked at me and said “I’m fuckin sick, dude”. She wanted me to know, in my own language, that things weren’t right. I didn’t really say goodbye during that talk, but it was, in effect, our goodbye. I took a picture of her hand that day. It was intended for me to get a fingerprint for some pendants for the kids. It was the last photo I took of her.

The drive home from the hospital was surreal. 6am. The sun was rising. Everyone was going about their business. I could not understand, looking into every stranger’s eyes in their cars how they were not overcome with sadness and grief, not crying their eyes out. I was exhausted and overwhelmed. And my next task was about to be my hardest. Harder than everything that had come before. I had to go back and tell my children that their mommy had died. I had no idea. I mean, I figured the day would come. But today? Shouldn’t that still be in some tomorow? I called Cricket, my counselor. Our counselor Her wise advice shone through like it often does. She told me my job was now to lead the grief. To show the kids that it was ok to be sad. Really, really sad. But to also let them know that the world was still safe and that I would protect them. To let them see me grieve. To let them see me genuinely stricken. But not to let them see me completely break down. If at all possible, to save that for when they weren’t around. And that’s exactly what I did.

J had gathered them up while we drove home. They were already awake anyway. I sat them down in R&J’s bedroom, us, them, and their 3 kids. I just told them that mommy couldn’t fight the cancer any more and her body was too sick to stay alive any more. Alyssa was heartbroken and came up and sat and cried with me. Ian was confused and sad. He also sat with me. Emma was just too young to understand. We sat and talked and shared memories. After a couple minutes, Ian got up and quietly starting playing with a fire truck. It was his own way of channeling his sadness. Alyssa just sat quietly with me. We just stayed together for a long, long time, crying. Wishing it weren’t like it was. Alyssa wanted to know some of the logistics - what would happen to Anna’s body? How would we get her home? She was very sad that she didn’t get to see Anna one last time. She wanted to see her body once more. I told her she’d have a chance at the funeral, but that it wouldn’t be the same. And that mommy’s spirit would always live on with her no matter where she was. We spent the day cocooned. Eating some, resting some. My nieces, nephew, and R&J offering endless comfort to all of us. I could not have survived the day, the whole process, this whole year without them.

Anna was a wise woman. She was raised on the beach and always wanted to move back there. She had saltwater in her blood. A Seal Maiden, I believe. If I didn’t know any better, I’d say she planned her own end so that she was on the beach. We had a small memorial service later the next day. We picked some flowers from R&J’s garden and took them to the Isle of Palms beach. We invited their minister. Said a few prayers. Kids and adults alike (and my father who had flown in for support and to help me with the drive home) tossed flower petals into the ocean, remembering Anna. We’ll be doing the same thing later today in the same place, just R&J and the kids and I.

Thank you Anna
Thank you for the love you gave me
Thank you for the 15 years of your life you shared with me
Thank you for the beautiful children you bore me, faces of God all
Thank you for your patience with me
Thank you for sharing your secrets with me
Thank you for sharing your body with me
Thank you for your wisdom
Thank you for your heart

I miss you dearly and will love you always.

Love,
Jase-o