May 2005

Anna Update 8 (from Reggie)

Hello,

Anna and Jason got some really good news today.

Anna went in for her second internal radiation treatment, called HDR. During HDR, they stick the radiation device along with a miniature camera down her throat in order to be able to directly radiate the tumor in her left lung. Two weeks ago, the tumor was sticking out of her lung into her esophagus through the bronchial tube so they couldn’t get into her lung.

Today, the tumor had receded back into her lung. The doctor could go into the bronchial tube to the point where it “Y”s. One part of the “Y” goes to the upper lobe of the lung and the other to the lower lobe. In the upper lobe, the tumor is almost entirely gone — there is still one small area of tumor in the upper lung. The doctor cleaned a bunch of mucus and dead tissue out of Anna’s upper lobe. Anna is able to use the upper part of her left lung.

In the lower part of the “Y”, the tumor had receded down the tube. Some air is able to go into the lower lobe, but most of the lower lobe is still tumor.

The doctor said this was one of the best responses she had ever seen in such a short period of time.

This is big news and good news. But it does not mean that Anna is out of the woods. She still has a long road to travel.

The plan in the short run continues to be the same. About two more weeks of radiation and chemotherapy. Then a round of extensive tests before deciding what to do next.

Anna Cancer

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Anna Update 7 (from Reggie)

Anna and Jason got some good news yesterday. The doctors believe the tumor in Anna’s left lung has shrunk by at least 5 cm (about 2 inches)!

Yesterday, Anna also had the procedure where the radiation device is insert in her throat (instead of being external) for more direct and intensive access. The procedure was easier than expected. Anna’s throat is somewhat sore, but not too bad.

All in all, yesterday was a good day for the Dufairs.

Best to all of you.

Anna Cancer

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Anna Update 6 (In her own words)

Hi there,

I can’t sleep. URG

I had 3 days of chemo this week ending yesterday. I was really sick on Monday so we didn’t start until Tuesday. My white and red blood counts are down. This is to be expected and will increase my tiredness and vulnerability to infection. Next Thursday I have the HDR treatment [that's the internal radiation on the tumor in her left lung...it's done by sticking the radiator down her throat] starting at 8 a.m. I am getting better about having my port accessed [the port allows her to get regular shots without getting needle tracks...her port is near her collar bone]. I don’t like needles. My cough is worse. This is to be expected. The cough syrup that really helps I accidentally spilled a bunch. So we have to get more today.

I will have one more round of chemo and then CT scans to test for results. The last round of chemo should be the week of 5/24. We have talked with Dr Roschal, my medical oncologist, about having me go straight on Taresva (sp) instead of waiting for the cancer to come back. There is a clinical trail I might be able to get in. So, the drug has not been used like this. But hopefully I can do that.

I am not sure if or when my lung will be removed and the tumor in my leg.

Virginia has been a big help. The volunteer support team we have is amazing. So helpful.

Have I told you about the quilts I am working on? I am working with a 78 year old friend from church to make 9 patch quilts for the kids in case something happens to me they will be able to sleep under my love. They are made from scraps of fabric from Patty’s leftover materials. Today I am hoping to go and learn how to put the binding on Alyssa’s. The top for Ian’s is done. Now I have to do Emma’s and Jason’s.

The cards, flowers, massage gifts have all been wonderful beyond words.

Love,
Anna

In the next email Anna says…

I have some unpleasantness. I now look like a cancer patient. I have lost a lot of hair. I am nauseous most of the time. Energy level is low. Throat hurts. Prayers and thoughts help. I really like watching my birds. I got a new humming bird feeder. No birds yet. Oh yeah…I have lost some feeling in finger tips. I don’t like to talk about all my little aliments which some days render me useless. It is boriiinnnnngggg.

Hearing about others lives is much more fun. So drum up some cute kiddo stories. [If you're wondering how to help Anna...dropping her a line telling he what you're doing...she also likes receiving pictures of kids or kids artwork. Postcards from the places you're visiting are a fun distraction, too.]

Please tell Steph [Reggie's sister-in-law who runs safaris in Botswana (just north of South Africa)] I love being on her mailing list. Pictures are just breath taking. New goal is to get well enough to go visit [Africa] with Steph as my guide.

Anna Cancer

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Anna Update 5 (from Reggie)

Anna is in the middle of the first round of therapy for her lung cancer. The first round entails radiation and chemotherapy. The radiation is administered every week day. It only takes about 6 minutes. But when you add the coming and going and set up time, it takes an hour or two. The radiation is administered from the outside to a precise location using a special brace that goes around Anna’s shoulders. In a week or two, they are also going to do radiation from the inside by sticking the radiator down Anna’s throat (sounds unpleasant, doesn’t it?) The radiation is only being administered to the tumor in Anna’s left lung. They are using the tumor in Anna’s right leg essentially as a control by not radiating it. Having a control let’s the doctors know if it’s the chemo (drugs that stop the spread of cancer throughout Anna’s whole system) or the radiation or both that is being effective.

The first round of chemotherapy runs in 3 three week cycles (nine weeks total). Each cycle has 3 days of chemo followed by 18 days of “rest.” (21 days or 3 weeks total). The chemo on the first day of each cycle is really long (about 12 hours) because Anna has to receive two chemo drugs. Days 2 and 3 are only a “few” hours.

This week Anna started cycle two of chemo. Monday she was sick to her stomach, so they didn’t start until Tuesday. On Tuesday Anna was away from home from 8 a.m. until 8 or so p.m. Anna’s sister (mine too!) Virginia held down the fort at Anna’s home.

Over the last couple weeks, Anna has had a couple scares…which have turned out not to be too much of an issue. First, she went to the hospital one night with a fever. Because of the way chemo works, cancer patients are more vulnerable to infection — especially from the bacteria that is naturally occurring on everyone’s skin. Anna’s supposed to go to the hospital any time her fever goes over 100.5. She went in with 100.9. Her white blood cell count was okay…so they gave her an anti-biotic and sent her home around midnight.

Anna is more nauseous than most lung cancer patients. In the “old” days everyone got nauseous but now they are able to control it for most people by giving them drugs. The anti-nausea drugs have been ineffective for Anna. So there has been some concern that she might have a brain tumor. A brain MRI showed that she doesn’t have a brain tumor…which is really really good news…but it was scary there for a couple days until they got the test results.

Anna’s white blood cell count has been dropping lately, but the doctors say that’s expected under the therapy. They are now giving Anna additional drugs to boost her white blood cell count.

Anna has started loosing her hair. Not all of it…but it’s getting noticeably thinner. She recently tried on the wig she bought when this all started.

Anna has had some good news. The doctors think the tumor in her leg is shrinking, from 14 cm to 9 cm. They will do a more complete round of test after the first round (9 weeks) of therapies is complete.

The non-medical updates…
Anna’s mom, Frieda Worrall, returned to Tucson on April 26 after about 6 weeks in Indiana. It snowed on Frieda’s final weekend in Indiana. Hopefully, Frieda can get some much needed R&R. She’s already returned to her beloved aqua aerobics class.

Virginia Fairchild, Anna’s sister, arrived in Indiana about 4 days after Frieda left. Virginia will be there until this Sunday. Many thanks to Virginia!

Jason has returned to work. He goes to nearly everyone of Anna’s doctor’s appointments and crams in as much work around the appointments as possible.

A ton of volunteers have been helping out with the kids, the chores, the errands. Someone is even helping them keep all the bills and insurance forms straight. Many, many thanks to all of you who have helped. Volunteers, one thing you can do to help make sure Anna doesn’t get sick is to wash your hands before you get to their house or immediately after arriving.

Anna and Jason’s youngest daughter Emma is scheduled to be dedicated at their church on May 29. It should be a wonderful event.

Several people have contributed to a fund for massages for Anna. The massages are very helpful for the achiness and fatigue that comes from chemo. Many thanks to everyone who has contributed. If you’d like to contribute, please contact Liz Bowes-Spiegel, a breast cancer survivor and the wife of Anna’s cousin Mark Spiegel. Her email address is bowesspiegel@comcast.net. Her U.S. Mail address is Liz Bowes-Spiegel, P.O. Box 420, Boulder, CO 80306. If we each give a little, then added together it might be of real benefit to Anna.

So many people have been helpful. Even if they haven’t been able to write, please know that Anna and Jason and their kids really appreciate everything all of you are doing. Your thoughts, your payers, your gifts, your encouragement, and your time and effort on their behave continues to be amazing and humbling. Anna must be on 50 prayer lists across the country.

If you’re still looking for additional ways to contribute, please consider giving to cancer research via one of the many terrific cancer foundations. The American Cancer Society has been particularly helpful to us as we’ve gathered information about Anna’s disease.

One last thought: In order to take the stress and time burden off Anna and Jason (and their kids) of answering (of hearing) the same questions over and over, please ask me your questions. I’ll do my best to gather the answers and share them with you.

Anna Cancer

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