Thanks for the great updates. The port is actually near my right collar bone and thankfully getting less painful. Monday will be a gruelling day starting at 7:30am with a shoot to prep for radiation, radiation at 8:10 and then chemo starting at 9 ending between 4-5pm. The shot is something that is supposed to help protect my internal organs since they are radiating so close to all my major organs - the heart, liver, kidneys. I am scared to start chemo. It seems like if the cancer doesn’t kill you the treatment will.
My coughing is supposed to get worse before get it gets better. At some point they have told me I will probably not be able to swallow so they will insert a ‘peg’ into my stomach for hydration and nutritional supplements. You don’t have to share all this gross stuff. I am not ready to embrace this yet.
This still seems like a journey I don’t want to walk down. But many of our truly challenging journeys are not ones any of us would choose.
Mom is taking more breaks as there as been a lot more volunteer support this week. She, Jase and I are much more comfortable with our new childcare provider for Emma which is a huge stress relief. Michon picks Emma up at 7:30am and drops her off at 3:30pm. Not much seems to phase her. Her 3 year old likes to help feed Emma. What a relief. Mom went to Ready Care and was treated for a sinus infection. She has been leaving early around 4pm and not staying to help get the kids ready for bed. Today she read to me for a while and then I napped. She was supposed to nap but chose to read her own book instead.
Ian seems to be getting used to the volunteers that are coming in the morning. He even asked Anne (one of my bosses at work) to take him to day care this morning. She has a 4 year old boy and is still in the swing of things when it comes to coaching little boys out the door.
We have found out about a local kids cancer support group that meets once a month at the YWCA. You have to be 6 years old to attend. Alyssa is interested in attending. The next meeting is this coming Tuesday. I reached out to Alyssa’s school counselor with low expectations of support and have been pleasantly surprised by her response and caring. She is now meeting with Alyssa once a week. I told Alyssa this past Wednesday night before I started radiation that I was scared to start radiation the next day. Alyssa said that it would be alright that she, Pappa and her school counselor would support me so I wouldn’t have to be scared. My sweet girl.
We went to Employee Assistance Program yesterday and got 10 play therapy sessions for Alyssa and Ian. Hopefully that will help.
I should try to get some sleep. Lying down is not always that comfortable. I have trouble breathing. Love to you guys. Share whatever of this note that you want,
Anna








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